Disclosure and Disclaimer

Welcome to the Syrinx Awareness & Athlete Coalition (SAAC) website. SAAC is a 501(c)(3) nonprofit organization dedicated to advocating for individuals  diagnosed with syringomyelia (Syrinx), promoting awareness, facilitating access to better care, providing helpful tips, and building a supportive community. While we strive to offer valuable information and resources, please read the following disclosures carefully. By using this website, you agree to these terms.

General Disclaimer

The information provided on this website, including articles, blog posts, resources, tips, and any other content, is for educational and informational purposes only. SAAC makes no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability, or availability of the information contained on this site for any purpose. Any reliance you place on such information is strictly at your own risk. SAAC is not a medical provider, clinic, or healthcare facility. We do not offer medical diagnoses, treatments, or direct patient care. Our role is solely as an advocacy group focused on raising awareness, connecting individuals to resources, and fostering a community for those affected by syringomyelia.

Medical and Health Disclaimer

The content on this website, including discussions of syringomyelia symptoms, management tips, research findings, and personal stories, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. SAAC does not endorse any specific treatments, procedures, products, or physicians mentioned on this site. Any helpful tips shared (e.g., regarding sleep, exercise, or wellness) are general suggestions based on publicly available information and community experiences; they are not personalized medical recommendations. Individual health needs vary, and what works for one person may not work for another. If you are experiencing a medical emergency, call your doctor or 911 immediately.

No Professional Advice

The information provided by SAAC, its staff, volunteers, or contributors does not constitute legal, financial, tax, or professional advice of any kind. For legal or tax questions related to donations or nonprofit matters, consult a qualified attorney or accountant.

Privacy and Confidentiality

SAAC respects your privacy. Any personal information shared (e.g., via donations, surveys, or testimonials) is handled in accordance with our Privacy Policy. We do not share protected health information (PHI) as defined under HIPAA, as SAAC is not a covered entity or business associate under HIPAA regulations. However, if you voluntarily share health-related stories or testimonials, we may anonymize and use them for educational purposes with your consent.

Limitation of Liability

In no event shall SAAC, its directors, officers, employees, volunteers, or affiliates be liable for any direct, indirect, incidental, special, consequential, or punitive damages arising out of your access to or use of this website, even if advised of the possibility of such damages. This includes, but is not limited to, any reliance on information provided, loss of data, or interruption of services.

Changes to This Disclaimer

SAAC reserves the right to modify this disclaimer at any time. Changes will be posted on this page with an updated effective date. Your continued use of the website constitutes acceptance of any modifications. (Effective Date: December 29, 2025) If you have questions about this disclaimer, contact us at syrinxcoalition@gmail.com. SAAC encourages you to consult your healthcare provider before making any changes to your health routine based on information from this site. We are here to advocate and support, not to replace professional care.