Privacy Policy
Syrinx Awareness & Athlete Coalition (“SAAC,” “we,” “our,” or “us”) respects your privacy and is committed to being transparent about how we collect, use, and protect information submitted through our website. This Privacy Policy explains what information we may collect, how we use it, and the choices available to you.
Scope of This Policy
This Privacy Policy applies to information collected through the Syrinx Awareness & Athlete Coalition website, including contact forms, donation pages, newsletter signups, grant or support applications, and other online interactions where this Privacy Policy is linked.
Information You Provide to Us
We may collect personal information that you choose to provide, including:
Name
Email address
Mailing address
Phone number
Donation details
Information submitted through contact forms, applications, surveys, or emails
Any health-related or personal details you voluntarily include in messages or applications
Information Collected Automatically
Like many websites, we or our service providers may automatically collect certain technical information when you visit the site, such as your IP address, browser type, device type, referring pages, pages viewed, date and time of access, and general usage data.
This information may be collected through cookies, analytics tools, server logs, pixels, or similar technologies, depending on the tools used on the website.
How We Use Information
We may use collected information to:
Respond to inquiries and communicate with you
Process donations and provide related receipts or acknowledgments
Administer newsletters, events, grant programs, applications, or support initiatives
Improve the website, user experience, and communications
Maintain internal records and organizational operations
Comply with legal, tax, financial, and reporting obligations
Protect the security and integrity of the website and our organization
Health-Related Information
Because SAAC serves a health-focused community, some individuals may choose to share diagnosis details, symptoms, treatment experiences, or other sensitive personal information. Please do not submit highly sensitive medical records or urgent health concerns through general website forms or ordinary email unless we specifically request them through an appropriate process.
Important: SAAC is not a healthcare provider through this website, and this site is not intended for emergency communications or clinical care.
Cookies and Analytics
We may use cookies or similar tools to understand how visitors use the site, improve performance, remember preferences, and evaluate website traffic. If your site uses Google Analytics, Meta Pixel, embedded videos, donation-platform tracking, or similar services, those third parties may also collect information according to their own privacy policies.
Recommended if accurate: Add a cookie banner or consent tool if you use analytics, advertising, or tracking technologies that require notice or consent under applicable law.
How We Share Information
We do not sell personal information. We may share information with trusted service providers or vendors that help us operate the website, process donations, send emails, host forms, manage communications, or administer programs, but only as reasonably necessary for those purposes.
We may also disclose information when required by law, to respond to legal process, to protect our rights or safety, or in connection with organizational transitions or restructuring if ever applicable.
Donation Processing
If you donate through a third-party donation processor, some payment and donor information may be collected and processed directly by that provider under its own privacy and security practices. SAAC may receive information such as your name, contact details, donation amount, and transaction confirmation, but we may not receive your full payment card details.
Email Communications and Opt-Out
If you sign up for emails or newsletters, we may send updates about our mission, programs, awareness efforts, fundraising, events, or resources. You may unsubscribe from marketing emails at any time by using the unsubscribe link in the message or by contacting us directly.
Data Retention
We retain personal information for as long as reasonably necessary for the purposes described in this Privacy Policy, including communication, recordkeeping, program administration, legal compliance, donor acknowledgment, and organizational operations, unless a longer retention period is required or permitted by law.
Data Security
We use reasonable administrative, technical, and organizational safeguards designed to protect personal information. However, no internet transmission or storage system can be guaranteed to be completely secure, and we cannot guarantee absolute security.
Children’s Privacy
This website is not directed to children under 13 for the purpose of collecting personal information online without appropriate consent. If you believe a child has provided personal information through the website without proper authorization, please contact us so we can review and address the issue.
Your Choices and Rights
Depending on where you live, you may have rights related to your personal information, such as requesting access, correction, deletion, or information about how your data is used. We will review and respond to requests as required by applicable law.
Third-Party Links
Our website may contain links to third-party websites, platforms, or resources. We are not responsible for the privacy practices or content of those third parties, and we encourage you to review their privacy policies separately.
Changes to This Privacy Policy
We may update this Privacy Policy from time to time to reflect changes in our website, operations, legal obligations, or privacy practices. Updates will be posted on this page with a revised effective date.
Contact Us
If you have questions about this Privacy Policy or how we handle information submitted through the website, please contact Syrinx Awareness & Athlete Coalition using the contact information listed on the website.
Effective date: 04/17/2026